Co-create policy solutions with patients, have them at the table and write together policy recommendations
Travaux en cours
Develop a process to include the patient voice in protocol review
Travaux en coursFor new studies, look at the feasibility of study procedures from a patient perspective: how would this procedure impact a sick person?
Travaux en cours
As part of the development project I'm doing I will develop solutions that are based on feedback from patients
Travaux en cours
Creating new way of working to better satisfy patients needs in clinical trials.
Travaux en cours
I will ask patient input to deeply understand their experience of participating in my/our study/ies, in particular regarding (select one or more) screening, informed consent, visit logistics, medication, study and/or visit information, CRF, questionnaire(s), diary, site team, blood and other lab tests…
Travaux en coursI will work with (prospective or past) study participants to create patient support materials/information that they feel is needed and helpful
Travaux en coursI will ensure a swift and understandable answer to any patient questions in the study, and also share these with the study team so that better/standard answers can be developed (with patients)
Travaux en cours
Patients and their communities will have a say in the development and implementation of the next clinical trial.
Travaux en cours