Provide sound scientific and relevant information in an understandable format and lay-person language.
Work in progress
experts by experience co-creation sessions
Work in progress
To actively reach out and obtain feedback on patient's and caregivers' experiences
Work in progressTo have at least 1-2 contacts with patients each year
Work in progress
1) Enagage sites /patients to better understand the patient journey with disease 2) Listen and not assume as we set up opeartional plans for execution of studies 3) Visit sites, ask questions and listen
Work in progress
I am committed to not only listening to our patients but also advocate for them.
Work in progressI am committed to communicating to our patients - especially in providing them the results of their participation.
Work in progress
I commit to be inclusive of the inputs I will receive from the patient engagement team as well as my personal and professional experience with patients and patients advocacy group. I will walk into clinical sites at least twice per year to hear directly from their voice the needs and the specific requirement to be included in the next stage of development of new drugs and solutions for patients.
Work in progress
GCDO Trial Leader, Associate Director at The Janssen Pharmaceutical Companies of Johnson & Johnson
I want to know how many visits the patient can commit to and how many procedures at each visit before creating a protocol that is burdensome on the patient and the patient's family.
Work in progress