Provide sound scientific and relevant information in an understandable format and lay-person language.
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experts by experience co-creation sessions
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To actively reach out and obtain feedback on patient's and caregivers' experiences
Travaux en coursTo have at least 1-2 contacts with patients each year
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1) Enagage sites /patients to better understand the patient journey with disease 2) Listen and not assume as we set up opeartional plans for execution of studies 3) Visit sites, ask questions and listen
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I am committed to not only listening to our patients but also advocate for them.
Travaux en coursI am committed to communicating to our patients - especially in providing them the results of their participation.
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I commit to be inclusive of the inputs I will receive from the patient engagement team as well as my personal and professional experience with patients and patients advocacy group. I will walk into clinical sites at least twice per year to hear directly from their voice the needs and the specific requirement to be included in the next stage of development of new drugs and solutions for patients.
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GCDO Trial Leader, Associate Director at The Janssen Pharmaceutical Companies of Johnson & Johnson
I want to know how many visits the patient can commit to and how many procedures at each visit before creating a protocol that is burdensome on the patient and the patient's family.
Travaux en cours